Friday, April 29, 2011

Cancer level is coming down

I found out today that my CA125 is now at 182. Remember, 35 and under is normal but mine had gotten up to 353. It's good to know the chemo is working. I'm just going to keep praying that this trend continues and it gets lower and lower!

Today I went on a field trip with Rachel Rose's class to Elachee Nature Center in Gainesville. I've been there before and knew what I was getting into as far as the long nature hike. But I went anyway. Rachel Rose was so excited to have me there. But I have to admit, it just about killed me!!! By the time I got home and took my medicine, I was practically paralyzed on the couch! I've never been much of a hiker anyway. Now I can rest assured, cancer has not changed me there in the least - not so much the naturalist!

So, I am going to bed now. They are replaying the royal wedding on GPB and it does look absolutely beautiful. But I've now seen the dress, seen the kiss, I'm done. Goodnight, everyone!!

Monday, April 18, 2011

Dr. appointment

I had my regular appt with Dr. Salmieri today and I'm feeling pretty good about everything. He agreed I should wait one more week before my next treatment to give my counts a chance to come back up. From now on, I'll get a Neupogen shot after every treatment. This will hopefully prevent my white blood cells from dropping too low.

He explained that the reason the tumor board recommended this line of chemo (Avastin and Abraxane) was because the cancer was now in my lungs. He said it's more of a last line of defense, but they wanted to go ahead and give me the big guns now. There still other chemos that I haven't tried yet, Topotecan and Doxil, to name a few. But I'm hoping this current round is going to knock it all out once and for all!!! AMEN!!!

I complained to him about the cough and the breathlessness. He said that goes along with the lung issues. Dr. DeMarco, the lung dr., tried some different inhalers and breathing treatments, but none really worked that great. I guess it's just something I'm going to have to manage on my own. For now, that means frequent breaks to catch my breath and just plain not doing alot. I really miss working in the yard. May sound crazy, but I love yardwork!!! Trimming, edging, planting, weeding - my idea of fun! I am still going to put some annuals in my planters, not going to let cancer prevent my botanical garden on the deck!

Mom has been staying with us when John is away, even though I am able to manage pretty well on my own. I try to tell her so, but she insists on staying. And who am I to turn down free help!!! God bless my Mama!!

Gotta run get the girls off the bus now!

Tuesday, April 12, 2011

Chemo cancelled

I did not have my treatment yesterday because of low blood counts. In fact, they are not planning on making it up and to keep me on my schedule, I won't go back until the 25th, two weeks! Makes me kinda nervous to go that long since the chemo is the only thing controlling the cancer from spreading. I called the nurse practitioner, Beth, to express my concern. She said it would be fine rather nonchalantly. I was pretty frustrated. I will see Dr. S on Monday for my regular appointment. I'm looking forward to talking with him about lots of things!

Sunday, April 10, 2011

Uncle Bob

Has it been two weeks since my last post? Yep, I believe so. We've had a rather busy stressful last few days. As many of you know, John's oldest brother Bob has been battling cancer. He was diagnosed a year ago with stage 4 esophageal cancer. Two weeks ago, he was hospitalized and we were told he could go at any time. But he had a miraculous recovery and made it home 4 nights later. We actually received a photo of him sitting up and playing his guitar the night he got home. We were so amazed! That's why it was such a shock when we got a call the very next night that he had passed. He had another GI bleed and did not recover. It was 10pm on Tuesday and John had just gone back to work in NC. He started out right away and met up with me on the way and we went down together. For the next 2 days we stayed in MIlledgeville to help plan the arrangements. Then we came back to pick up the girls and spent the next 2 days down there for the services. It was a beautiful service. John spoke and expressed the simple life Bob led and his love of music and the outdoors. We all got to spend some wonderful time with family we rarely see. It's a shame that it takes an event like this to bring us together. But as Caroline said, we love our "country" family.

As for me, I have been feeling fine. I've been taking it easy, sitting around a lot, taking naps frequently, and pretty much not exerting myself at all. It's frustrating not being able to do things like I normally should be able to. But I just keep hoping that at some point I will get my energy back. I'm still on schedule with my chemo and I'm thankful to say that it really hasn't gotten me down at all. I don't have the "yuckies" like I did before which is an incredible blessing!

This wonderful weather has been huge in making me feel better. As I type right now, I am sitting on our back deck with the company of the girls and our dog, Penny. Rachel Rose has found an inchworm which she named, Greenie. Let's hope the poor thing finds his escape soon! As much as I would love to be down in the yard working, I know it's not the best thing for me. I'm all about the healing now and not putting any extra stress on my body. I did plant a few vegetables and they are doing really well. Even my strawberry plant from last year has come back and has made a few blooms. I hope we get some strawberries this year! The geese are back this year and we should see some little goslings soon. It's always fun to watch them. Usually, if we start feeding the mom and dad, the babies get used to us and will let us pet them. If anyone would like to come pet the geese or come fish in the pond, just give us a call. We'd love to have you!

Tomorrow is my last treatment for this first round, then I get a week off. I'm really hoping the cold caps keep working because my hair is really coming in. it's wavy again like it was last time it came back in. I've got these curly wispies flipping out all over. But I love it - it's hair!! It probably could use some color, the last I used made it orange. But I don't want to stress it any more than necessary. Plus, I've heard that chemo can have strange effects on hair color, wouldn't want to have purple hair or anything!

Well, Rachel Rose has decided to let Greenie go free. Very proud of her! We'll see what will be the next thing she's on to . . . there's no telling with that one!